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Website and Social Media Terms & Conditions


Our Human side of T & Cs

Thank you for visiting our website Before using this website, be sure to read the Terms and Conditions carefully as use of this website will be subject to them.

Working online is challenging and often we have no control over much of what is said in social media posts.  Our aim is to offer a safe online experience this includes all our social media platforms plus this website therefore, we need to be careful of the answers we give.  We ask our members, supporters, and followers to refrain from posting until you have time to think through your answers before posting.  Our focus is advocacy, education, friendship, learning from one another, positivity, and support. 

We have evolved into our own Community online and we are fortunate to be invited to events in our local community therefore these terms and conditions will apply for all L-W-O Community activities.

  • L-W-O Community is an Independent not for profit patient association, accessible to any person who has Primary or Secondary lymphoedema or Lymphatic Malformations their caregivers, family, or friends. The L-W-O website is written by Gaynor Leech who lives with secondary lymphoedema and is written entirely from a patient's point of view and is not intended to be a substitute for independent medical advice.

  • The information on this website and our social media platforms is intended for use by UK residents.  

  • Our overseas visitors are welcome; however, we strongly advise all our visitors to consult their own health-care professionals.

  • By reading this page, as a member of L-W-O Community Support group, or followers of our community page, or other social media platforms, you are acknowledging our Medical Disclaimer at the bottom of this page.

  • Material on this website, and our social media platforms is for information only and is not intended to be a substitute for independent medical advice.

  • Material on this website and across our social media platforms means any information that includes data, text, graphics, links, and any other material L-W-O Community publishes.

  • L-W-O Community accepts no liability in relation to typographical error.

  • We accept no liability for third party information.

  • The L-W-O Community website and social media platforms contain links to other websites.  These are provided as useful sources of information and inclusion of such links to other websites does not imply endorsement by L-W-O Community, of any kind as to their content or quality.  For further details please read our website linking policy.

  • We will not tolerate any form of verbal abuse, foul language, name calling or harassment across our social media platforms and any member who doesn't adhere to this policy will be removed or blocked.  For further information please check our safeguarding policy.

  • On social media writing in capital letters is deemed to be shouting and therefore is considered aggressive and will not be tolerated in our community.

  • For the safety of our members, do not re-post content from within the closed group and post elsewhere. This includes screenshots.

  • Material from our Community Page which is our public page can be shared if L-W-O Community receives the credit.

  • If you share information from another social media platform or someone else's story, please make sure you have permission to share the post or story as L-W-O Community accepts no liability for these posts.

  • You are aware that we receive no formal financing, so we conduct fundraising campaigns on occasion to pay the costs of administration, content creation, graphic design, video production, and website management. Annual subscriptions are voluntary. Our survival depends on the generosity of our members, both in terms of words and financial contributions.

The Legal Side - Website and Social Media





These Website Terms of Use, together with the documents referred to in them, set out the terms under which You may use our website at


1.             Definitions and Interpretation 


In these Website Terms of Use, the following expressions have the following meanings:



means any and all text, images, audio, video, scripts, code, software, databases and any other form of information that appears on, or forms part of, Our Website and/ or our social media channels (including but not limited to:


“Data Protection Legislation”

means all applicable data protection and privacy legislation in force from time to time in the UK including the UK GDPR; the Data Protection Act 2018 (DPA 2018) (and regulations made under it); the Privacy and Electronic Communications Regulations 2003 (SI 2003/2426) as amended and all other legislation and regulatory requirements in force from time to time which apply to a party relating to the use of personal data (including the privacy of electronic communications);

“Intellectual Property Rights” means:

(a) any and all rights in any patents, trademarks, service marks, registered designs, applications (and rights to apply for any of those rights), trade, business and company names, internet domain names and email addresses, unregistered trademarks and service marks, copyrights, database rights, know-how, rights in designs, inventions and processes;

(b) rights under licences, consents, orders, statutes or otherwise in relation to a right in paragraph (a);

(c) rights of the same or similar effect or nature as or to those in paragraphs (a) and (b) which now or in the future may subsist in any part of the world; and

(d) the right to sue for past infringements of any of the foregoing rights;


“We/Us/Our” means L-W-O Community of 1 Fairway, Nuneaton, CV11 6NP, as the owner and operator of Our Website; and “You/ Your” means you, as a user of Our Website.


2.            Acceptance of Term

By accessing or using Our Website, you agree to comply with and be bound by these Website Terms of Use. If you do not agree to these terms, you should not use Our Website.


3.          Changes to Terms

These Website Terms of Use may be revised from time to time without notice. Your continued use of our Website after any changes will constitute your acceptance of such changes.  These Website Terms of Use were last updated on 12th June 2024.


4.          Privacy Notice & Data Protection

Your use of Our website is also governed by Our Privacy Notice which can be found on our website.


We will collect, use and process Your personal data (including any personal data you supply when setting up Your Account) in accordance with our obligations under the Data Protection Legislation and Our Privacy Notice.


5.          Account

You may need to create an Account to access some parts of Our Website.  You must ensure You provide accurate information when creating Your Account and keep that Account information up-to-date if it changes.

You must create a strong password for your Account. You must not share Your Account password with anyone. You must not use anyone else's Account.


You must contact us immediately on if You believe anyone else is using Your Account.   

You may close Your Account at any time.  However, You will not then be able to access those areas of Our Website which require an Account to access them.




6.          Intellectual Property

All Content on Our Website and Our social media accounts, including but not limited to text, graphics, logos, images, and software, is Our property (or the property of Our licensors) and is protected by copyright and other intellectual property laws.    


You may not use, reproduce, distribute, sell, sub-licence, store or create derivative works based on any Content from Our Website or Our social media accounts without Our prior written consent.

You may access, view and use Our Website in a web browser, print pages from Our Website and save pages for later offline viewing.

You must always acknowledge Us (or Our licensors, as appropriate) as the owner of the Content on Our Website and on Our social media channels. 



7.          User Conduct



You agree to use Our Website for lawful purposes only and not to engage in any activity that could harm Our Website, its users, or third parties.


            You may not:

 Use Our Website for any illegal or unauthorized purpose.


Post or transmit any content that is (or could be construed as) harmful, offensive, discriminatory or violates any applicable laws.

Deliberately introduce any virus or malware, or attack Our Website by means of a denial-of-service attack;


Attempt to gain unauthorized access to Our Website or its systems: or


Link to Our Website in a way which suggests any association between You and Us or any endorsement by Us, or in a way which might damage Our reputation or take unfair advantage of it.

We reserve the right to suspect or terminate Your access to Your Account or to Our Website if You breach the terms of this Clause 7, or any other terms of these Website Terms of Use.


8.          Links to Third-Party Websites

Our Website may contain links to third-party websites.  We are not responsible for the content or these third-party websites and shall not be liable in respect of any such content.  We are not endorsing that content by linking to them. You should review the website terms and policies of any third-party websites you visit.


9.          Disclaimers

It is your responsibility to read our Medical disclaimer, that is the footer on every website page and our social media platforms.

We make no representations or warranties, express or implied, that Our Website will meet Your requirements, that it will not infringe the rights of third parties, that it will be compatible with all software or hardware, or that it will be secure.


We make no representations or warranties regarding the accuracy or completeness of the Content, or that the Content is up to date.  We shall not be liable to You for any inaccuracy contained in the Content or for any reliance You may place on that Content.

10.        Limitation of Liability


To the fullest extent permitted by law, We shall not be liable for any direct, indirect, incidental, special, or consequential damages arising out of or in connection with Your use of Our Website.  If You are a business owner, We shall not be liable for loss of profits, sales, business or revenue, loss of business opportunity, goodwill or reputation, loss of anticipated savings, business interruption or for any other indirect or consequential loss or damage.


11.        Indemnification


You agree to indemnify and hold Us, and Our officers, directors, employees, and agents, harmless from any claims, liabilities, damages, and expenses (including legal fees) arising from Your use of Our Website or from Your violation of these Website Terms of Use.


12.        Governing Law


These Website Terms of Use are governed by and construed in accordance with the laws of England and Wales. Any disputes arising from these terms shall be subject to the exclusive jurisdiction of the courts of England and Wales.


13.       Contact Information

If you have any questions or concerns about Our Website or these Website Terms of Use, please contact us at or via any of the methods set out on Our ‘Home' page.

L-W-O Support Groups

  • The L-W-O Support Group is a private group, members posts, and conversations are private within the group, therefore at no time should these be shared outside the groups.

  • At no time should screenshots be taken of private conversations.

  • L-W-O Community ask members to be respectful towards other members

  • We ask members to think before they write a post or post photographs that other members might find upsetting or offensive.

  • Admin and moderators reserve the right to remove written posts and photographs that do not comply with our Terms and Conditions

  • Admin and moderators reserve the right to remove written posts or photographs other members find upsetting or offensive. 

  • We are an AD and Spam free zone

  • We cannot allow individual Fundraisers or Crowd Funding by individual members

  • L-W-O Community very occasionally receives complaints from members, and we respectfully ask members to follow our complaints procedure which you will find below.

"We will not tolerate Blatant Self Promotion

We will not tolerate any form of verbal abuse, foul language, name calling or harassment across our social media platforms and any member who doesn't adhere to this policy will be removed or blocked".    

Complaints Policy


In the first instance please email Gaynor Leech at: please do not send an official complaint via Messenger.  


We respectfully ask members of our Facebook support groups to direct the complaint to us via email. 


Complaints reported via Facebook run the risk of the group being sanctioned or removed. 


L-W-O Community takes all complaints seriously and will deal with them as quickly as possible.


Please note:  Complaints will usually be acknowledged within 48 hours during the working week.  They will not be dealt with on a Saturday or a Sunday and will be dealt with on the next working day.


Our aim:  Is to deal with the complaint within seven working days.

In the event:  No satisfactory conclusion can be reached after seven days the complaint will be put out to the L-W-O support group members for adjudication.

Page produced by Gaynor Leech

Our Terms and Conditions were first produced in October 2016

Page last updated 30/06/2024

Planned review June 2025

The L-W-O Community Website is an ongoing project therefore, reviewed regularly, and we reserve the right to update and remove information as is necessary.  Terms and Conditions are reviewed on a yearly basis.

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